The Nordic countries hold a unique position in international health research thanks to their comprehensive, population-wide health and demography registers. These extensive data offer an unparalleled opportunity to study long-term health issues after Covid-19 and other infections.
The first workshop will focus on the best use of health records to characterise PCC and identify those who are affected by it.
In the second workshop, clinicians and patients will contribute to ensure the research agenda reflects the real-world experiences of those treating and living with PCC. The third workshop will focus on how to link biological sample results and register data to discover how PCC develops and how it might be treated.
The final workshop will examine the societal effects of PCC, including its impact on work, education, and healthcare needs. Insights gained may help governments develop better policies.
This network project aims to 1) establish state-of-the-art guidelines for studying PCC in the Nordic countries, 2) provide cross-disciplinary inspiration to PCC researchers, and 3) build a network of Nordic researchers better prepared to study the long-term burden of infectious diseases now and in the future.
While the network will benefit the Nordic countries directly, it also has the potential to help researchers and PCC patients worldwide. The network will be committed to sharing its findings openly, allowing others to learn from and build on its insights. The network will pay particular attention to ethical considerations, taking into account the different ways PCC affects different groups of people in the Nordic countries.